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ABOUT CAVERNOUS ANGIOMA

  • Overview
  • History
  • Mission and Goals
  • Board of Directors
  • Scientific Officer
  • Scientific Advisory Board

NEWLY DIAGNOSED

  • Basic Cavernous Angioma Information
  • Imaging
  • Finding A Doctor
  • Questions to Ask Your Doctor
  • Glossary
  • More Information

GENETICS & GENETIC TESTING

  • Genetics of Cavernous Angioma
  • Do I Have Sporadic CCM?
  • Why Should I Be Tested?
  • Help To Get Testing
  • Insurance/Testing Lab Info
  • Letter for Doctors
  • Testing Asymptomatic Children

SYMPTOMS & TREATMENT

  • Brainstem Cavernous Angiomas
  • Central Pain Syndrome
  • Epilepsy
  • Hemorrhage
  • Radiosurgery
  • Venous Angioma/DVA

SURGERY

  • Preparing for Surgery
  • Things for the Hospital
  • Caregiver Information
  • Emotional Support

REHABILITATION

  • Types of Rehabilitation
  • Cognitive Rehabilitation
  • Vocational Rehabilitation

PREGNANCY & PEDIATRICS

  • Pregnancy and Cavernous Angioma
  • Cavernous Angioma and Children
  • Cavernous Angioma and School

CCM3 Mutation

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    Pen
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    Blue Cozy
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    Baseball Hat

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    Baseball Hat
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    Blue Cozy
  • bottle1_sized

    Bottle
  • bracelets_sized

    Bracelet
  • mug_sized

    Mug
  • pen_sized

    Pen
  • pin2_sized

    Pin
  • shirt_sized

    Shirt
  • stressball_sized

    Stress Ball
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ABOUT CAVERNOUS ANGIOMA

  • Overview
  • History
  • Mission and Goals
  • Board of Directors
  • Scientific Officer
  • Scientific Advisory Board

NEWLY DIAGNOSED

  • Basic Cavernous Angioma Information
  • Imaging
  • Finding A Doctor
  • Questions to Ask Your Doctor
  • Glossary
  • More Information

GENETICS & GENETIC TESTING

  • Genetics of Cavernous Angioma
  • Do I Have Sporadic CCM?
  • Why Should I Be Tested?
  • Help To Get Testing
  • Insurance/Testing Lab Info
  • Letter for Doctors
  • Testing Asymptomatic Children

SYMPTOMS & TREATMENT

  • Brainstem Cavernous Angiomas
  • Central Pain Syndrome
  • Epilepsy
  • Hemorrhage
  • Radiosurgery
  • Venous Angioma/DVA

SURGERY

  • Preparing for Surgery
  • Things for the Hospital
  • Caregiver Information
  • Emotional Support

REHABILITATION

  • Types of Rehabilitation
  • Cognitive Rehabilitation
  • Vocational Rehabilitation

PREGNANCY & PEDIATRICS

  • Pregnancy and Cavernous Angioma
  • Cavernous Angioma and Children
  • Cavernous Angioma and School

CCM3 Mutation

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© 2015 Angioma Alliance Canada | A Member of CORD (Canadian Organization for Rare Disorders)
Information has been provided by our U.S. affiliate, Angioma Alliance (www.angioma.org)