It is our mission to inform, support, and empower individuals affected by cavernous angioma and drive research for a cure.


To find a permanent cure for CCM


  • Facilitate and participate in cavernous angioma research to achieve a complete understanding of the disease and, ultimately, a cure.
  • Provide information to educate and improve the lives of people affected by cavernous angioma.
  • Foster and promote a caring community to provide support.
  • Involve people in advocacy and active participation toward a cure.
  • Build and sustain a broad base of funding sources to adequately support our mission and goals.