About Cavernous Angioma

 

Welcome to Angioma Alliance.  We hope to provide you with the information and support that you need to understand your diagnosis and make treatment decisions.  The links from this section are a good place to start learning. The Newly Diagnosed section of our site provides the basic information everyone should know about cavernous angioma as well as a Glossary of medical terms associated with cavernous angioma. Basic Cavernous Angioma Information provides an introduction to the statistics, symptoms, and treatment of cavernous angioma.  You can receive some direction for finding a neurosurgeon, neurologist or other specialist at Finding a Doctor. Finally, you will find a helpful list of Questions to Ask Your Doctor during your next appointment.

 

Cavernous Angioma – Cavernoma – Cavernous Malformation – Cavernous Hemangioma or acronyms like: CCM (Cerebral Cavernous Malformations) and CA (Cavernous Angioma)

These terms are used interchangeably to refer to mulberry-shaped abnormal blood vessels in the brain or spine. Angioma Alliance Canada is an organization for and by individuals who have these abnormal blood vessels and those who care about them.

There is a great deal of information to learn about living with cavernous angiomas. Here you will find information about symptoms and treatment, surgery, rehabilitation, genetics, diagnostic testing, pregnancy, and pediatric cavernous angiomas.

If you have questions about this information, feel free to write angiomaalliancecanada@gmail.com, or ask your question on the Community Forum or connect with a Peer Support volunteer.